Information & Research Hub Manager
CLDF is a small, unique national charity which punches well above its weight. With a rare condition such as childhood liver disease, information is key and CLDF provides an unrivalled and respected information hub which is as valuable to medical professionals as it is to newly diagnosed young people and their families.
Please find out more about the difference we make at childliverdisease.org.
Our close relationship with our beneficiaries means we have a valuable contribution to make to discussions about developments in treatment on a national and international level with organisations including NICE, Public Health England, RCPCH and BSPHGAN. A
We’re therefore looking for an exceptional candidate who has the vision to develop and deliver this role within our ambitious charity, making a real difference to young lives and supporting and informing families affected by childlhood liver disease and the professionals who work with them.
The successful candidate will be responsible for managing the review and development of patient and parent resources, including literature and apps, whilst keeping the CLDF team informed of relevant research in the field and its subsequent dissemination to supporters. The role will be responsible for managing our research hub which supports patients and families to improve the design of research applications made by external groups. The Information and Research Hub Manager is responsible for CLDF’s health information campaigns, including our renowned Yellow Alert campaign (yellowalert.org) to promote the early identification of liver disease in newborn babies; and will elicit the views of our families and young people on a wide range of policy related issues to help inform our lobbying work and create meaningful change.
Educated to degree standard with experience of delivering health information to the public through a variety of mediums, including using digital technologies, you will need to demonstrate that you have a thorough knowledge of the workings and structures within the NHS. The successful candidate will need to demonstrate the ability to work in a team, be capable of working independently with initiative and achieve targets and support the charity to achieve its overall mission.
Please note that a Disclosure and Barring Service (formerly CRB) check will be undertaken.
To apply: Please view the full job description on our website Information and Research Hub Manager - Childrens Liver Disease Foundation Information and Research Hub Manager (childliverdisease.org) and send your CV with a covering letter explaining how your skills and experience meet the needs of the role to email@example.com. If you should need any further information please call 0121 212 6009.
Interviews for the post will take place on Wednesday 16th February 2022 at our offices in Birmingham city centre, a 5-10 minute walk from Snow Hill and New Street stations.
NO AGENCIES PLEASE.